Epilogue

According to the metrics from the WordPress website which hosts all of the Libby’s Living Legacy stories, most people who read these posts only see the current issue but the following link will give you access to every post, that is, if you care to scroll down through the long list:  https://libbyslivinglegacy.com/

Soon after Libby’s memorial service I began writing about our relationship, beginning with our first date. The process of writing and the resulting stories served dual purposes:  altruistically, as a gift  to our grandchildren and selfishly, for their therapeutic value to me; both purposes have been accomplished and I really appreciate the encouragement, notes and letters.

Epilogue

Libby was always a sucker for a Hallmark love story movie, so as recompense for watching sports with me, I suffered through more than my fair share of the one and a half hour, happily-ever-after, chick flicks.

One movie in that genre was entitled Love Comes Softly which was released in 2003 based on the book by the same name from author Janette Oke.  The Christian themed movie quickly became Libby’s favorite and the release of each new movie sequel (and few prequels) was an event not to be missed in our home. Set in the 19th century as the West was being homesteaded, the original movie had a predictable plot centered around a widow and a widower whose relationship begins to develop because of their common loss and their need for survival.    During one memorable part of the movie, the widower’s 5-year-old daughter notices that her dad’s grief has slowly subsided and as he begins to enjoy life with his new family she comments, “My Daddy got his laugh back”.

Every couple, I am sure has them, those quirky sayings shared with one another which make absolutely no sense to others because they weren’t privy to the back-story. I am confident the same thing happens in many relationships just like it did between Libby and I because after watching a movie together, one of us would repeat a line from the movie, so many times in fact, over the next few weeks, that it became woven into a our daily vocabulary. For instance, Libby would often talk about a friend who had been mourning and say, ” I sure hope she gets her laugh back”.

Thirty five years of marriage changes a person, for better or worse (pun intended). Each person’s individual beliefs, goals, temperament and even personality are melded together and both parties eventually assume different (hopefully better) beliefs, goals, temperament and personality.  Those quirky little sayings shared by a couple are as much a part of this new life as the first day of school or the first time you sang in front of the church. Some of us who “married up” as they say, were blessed to be in a relationship in which the benefits received from the relationship far outweighed the benefits given and the subsequent changes are monumental.

Several weeks before Libby died we were discussing how much we both have grown and changed in our relationship with each other, she was thinking more and more about her future, our boy’s future and my future. Libby worried about our boys and how they were they going to be able to handle the loss of their mother; that’s when Libby looked at me and said,  “I’m sorry that I will not be around for our boys, but I am also sorry that I will not be around to grow old with you……”

My response to her melancholy dialogue was to try to get her to talk about something else, so I jumped in with, “Now, Libby, don’t be talking like that….you’re not going anywhere for a long time….” .  But this time Libby stopped me in mid sentence and continued her thought by asking, “……I wonder how long it will take……..after I am gone……..before you to get your laugh back…….?”

 

Letter Two

Second letter to Libby:

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Dear Libby,

Its confession time; now it may come as a surprise to you but during our marriage when we were sitting around the house and you were talking to me, I wasn’t always listening intently to every single word that you were saying especially if there was a football game on TV.

Shocking, I know.

Case in point; I vaguely remember remarks about colors – whites- bleach – temperature and other things about laundry that you thought  I should know. Well shortly after you left, although its not really my fault (blame it on ESPN) I somehow ended up with pink underwear, tie-dyed dress slacks and a very large iron shaped logo melted into the lapel of my synthetic, wicking “no iron” shirt.

Although my laundering skills might be suspect, on the bright side I have lots of new clothes and more grease rags than I will ever use. Now, obviously there is no reason to cry over “spilt” milk, besides if  I used these letters to try and make amends for all of the foolish things I have done there wouldn’t be room for me to write about the things that have been happening.

Speaking of current events,  do you remember what we were doing at this time four years ago?  (Of course, you probably posses total recall) but in case you don’t, we were watching the 2012 London Summer Olympics. I can’t help but think of those times when we sat on the couch with a bowl of popcorn between us watching gymnastics, swimming and track and field.  Spoiler alert, the US girls gymnastic team is stronger than ever and Micheal Phelps has more gold than the Aztecs.

In the normal letter writing process this is where I would say, “Well, I’m sure you already read my first letter” but the truth is I have no clue if you even received my first letter.  It gives me a headache when I try to understand the relationship between heaven and earth. For all I know, you may have seen this letter as I typed it and maybe you witnessed the Olympics and my laundry debacle? Hey, can you see the winning lottery numbers?

Speaking of writing letters, I now have blog! Again, shocking news I know. Of course, being the author of a blog isn’t exactly a great accomplishment because if you have the ability to launch Windows Explorer, you can start a blog.  But can you believe it? Me, the guy who hated English Composition class in college is now writing without being forced to do so.

I mentioned the blog because I often look back through old pictures and letters to reminisce about our life together and sometimes  post stories about you. OK, that’s not totally true, because every story I post in my blog is about you.

A few months ago I told the story about the rainy Sunday afternoon during that time when we were remodeling the master bath. I told my blog readers how we sat together on our couch and you began crying.  If you remember, I asked why you were crying and you said, “I’m afraid the last scan is going to show that the cancer is back and I’m never going to get to sit in my new tub!”  I tried consoling but you recoiled from my hug, shook your finger in my face and said, “…and if you think that SOME WOMAN is going to sit in MY TUB, you’ve got another think coming mister”.

Well, since its confession time, some “woman” has been in your tub several times:

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In other news, we are planning our 40th high school reunion, can you believe it? We have been passing around yearbooks and old photos at our planning sessions and telling stories about dances, homecoming and our favorite teachers. I really feel old when the conversation turns to kids, grand kids and even great grand kids. That got me to thinking, are you getting older in heaven or will you be 56 when I get there? Again, I am struggling with the whole dynamic of time and space between heaven and earth.

But wait, what if you are not aging and what if I don’t die until I’m 95?

How do you feel about older men?

Love, Barry

 

Letters to Libby

Libby battled breast cancer for five relatively healthy years but her health declined rapidly in the last three months of her life. During those final months it was painfully obvious to both of us that although she won a few battles she was not going to win the war.  Because of the time we had together toward the end everything that needed to said between us was said, but that hasn’t stopped me from dreaming about spending just one more day with her.

Now, I’m not delusional enough to believe that God will give me a day with Libby; I am, however, sufficiently deluded enough to write a few letters to her:

Part I

Hey Babe,

There are so many questions that I need to ask, but I fear that this communication method is going to be a little one-sided, if in fact you even get to read this. It may be like that marriage conference that we attended where we were asked to write out our concerns and exchange letters instead of talking to each other. That’s where we learned that the very act of writing things out often helps the writer more than they help the reader.  Could that be the case here?

Things have been really busy around here since you’ve been gone and I wanted to fill you in on some of the happenings.  I’m sure you have missed me but I’m going to predict that you have not finished talking to everyone in heaven that you wanted to talk with, even after 28 months, in fact you may not have even finished talking with your dad yet.

After you left in the early morning hours of March 25th, two years ago, everything changed for me down here (and by “down here” I mean of course, down here on earth… not …. well…  you get the idea).  I’ve had the normal depression, loneliness, anger and jealously of other couples (maybe I still do ) but the most difficult thing that I have had to overcome is the urgent need to call you immediately following an exciting event that I hear or see. It took months before I stopped reaching for my cell phone to call you when I heard something that I knew you would enjoy hearing.  I miss that child-like excitement and pure joy that you always showed when good things happened for your friends or family.

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Since I can’t pick up that cell phone and call, I decided to write a letter and well, I guess I just need to start at the beginning:

That Celebration of Life service that you requested was a tremendous success. It was standing room only in the sanctuary and we added video screens in the gym so those in the overflow area could watch the service.  I may have been experiencing some shock during the visitation portion of the service because with each new face that I saw I thought, “I need to tell Libby that they are here, she will want to talk to them”.

After the service I began looking through old pictures and letters that we wrote to one another. That’s when I decided that our grandchildren should know their grandmother and “our story” so I began writing about how we met, our first date, etc. which eventually led to a blog. Maybe you’ve even read the blog?  See, once again, I’m not sure what you guys can see and what you can’t see.

I was writing in my blog the other day about the arguments we used to have, some petty and some were serious. Although we both matured a lot in our 35 years of marriage, in the beginning, at least, we both insisted on getting the last word in and always being “right”. In one of our “discussions” when you thought I was taking you for granted, you made the comment, “If anything ever happens to me you will be find someone else, forget about me, and be remarried within six months!”. At the risk of once again sounding petty and immature I have to say: ” You were wrong…I won that one! ”

Since we are keeping score (or at least I am keeping score) I also remember a discussion we had one night just before you left when I said, “Libby, I’m so sorry that this is happening to you, I wish there was something more I could do.”  I’ll never forget your reply:  “Are you kidding me?” you said, ” I have the easy part.  I just have to lie here and let you take care of me for a little while longer and then I’ll be in heaven, but you have to stay here and live without me”.

OK, I’ll have to give you that one, you were right. Although I’m not sure how hard it was to die, living without you has been harder than I ever thought it could be.

You also used to tell me that I was way too independent and that I really didn’t even need a wife. Well, you were wrong on both points becasue I can tell you from experience, independence is not what its cracked up to be and although I didn’t always say it, I always needed you.

Now (and this is totally off of the subject) speaking of needing things, where did you put the vacuum cleaner bags? I’ve looked in all of the obvious places.

There are so many things that I would like to talk to you about, some are monumental things like two of the most gorgeous granddaughters in the world who have their “PaPa Bear” wrapped around their fingers. Then there are the not-so-monumental things that I need help with, such as: Is there some kind of code to match up the right Tupperware top with the bowl or do I have to try every single, stupid, plastic top in the stupid Tupperware drawer?

Can you see us down here? I’m not sure if you guys can see us moving about on this earth? There are versus in the Bible that are very likely meant to be a mystery, but I have read about “a great cloud of witnesses” so there is definitely something is going on up there. Anyway, if your can see us, I’m sure you noticed that the wedding ring which you put on my finger, is now gone. But wait, there is a story:  You see, Nathan put his wedding ring into the pocket of his surgical scrubs and then forgot about it when he threw them out, so I thought you would approve if I gave him my wedding band.  It still feels awkward and many times I feel guilty not wearing a ring but I guess I’m slowly getting used to it.  Sorry.

A lot has happened in 28 months and I have a lot more questions and things to tell you, including updates on our church, our friends and even politics ( You will not believe who is running for president! ).  I’ll write again soon.

I love you more,

Barry

 

 

 

 

 

 

 

 

A Tribute to My Dad

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My dad, Maurice Gilley, began having health issues about the same time as Libby’s cancer returned, in fact, Libby and I were visiting the assisted living facility with my dad on the day before Libby was admitted to the hospital.  My dad’s Alzheimer’s took his mind away from us over the next two years while Libby’s cancer took her away from us over the next three months. The following is the tribute that I delivered during my dad’s funeral:

I met an old man in 1985 who, as a young man, knew my dad’s dad in the early 1900’s and he told me about a time when my Granddad (L.H. Gilley) was building houses in Chattanooga and St. Elmo, then selling them to war veterans returning home from Europe. My Granddad eventually became a one-stop-shop for the first-time home buyer, personally financing dozens of houses so the buyers didn’t have to go to the bank for a loan.

My friend also said that by the 1920’s L.H. Gilley, had become one of the wealthiest men in Chattanooga; at least until early September of 1929 when he was warned by his banker to gather as much cash as possible because something “bad” was about to happen. As the Great Depression swept the country, the housing market crashed and Granddad lost his fortune, one house at a time, becasue tenants were unable to repay their home loans.

With a few hundred dollars to his name, my Granddad left Chattanooga and moved his family fifteen miles South to High Point, GA where he bought a farm and few animals, just to feed his family. That depression left an indelible mark on my Granddad, changing him from a freewheeling confident businessman to a cautious, somewhat cynical man, who believed everyone was one bad decision away from poverty.

I had heard bits and pieces of that legacy growing up and I remember telling my Granddad with a childish whine in my voice, “You should have made those people pay you back for those houses”. It was difficult to get him to talk about it but I kept pushing the issue until he answered, “You don’t understand, no one had any money, no one. What I had was eight children to feed, I needed beans, corn and milk, not money, besides those poor people living in my houses needed their money to feed their kids.  We were all just trying to survive.”

My dad, Maurice Paul Gilley was born into this, hardworking, strictly disciplined, but ironically compassionate family in December of 1928 just as The Great Depression was ending; its influence, however, would continue to shape him and our family, for generations.

Libby used to tell a story about how resourceful my mom and dad were and how cautious they were with their money; my parents had just moved into their new house in Winchester and decided that the seven tall windows facing the lake needed window blinds. Walmart had some blinds on sale for $9 each, but they were six inches too short.  Custom blinds would have cost $45 each so my mom and dad bought the cheap blinds along with one extra blind, then they took out enough string and slats from the extra blind and lengthened each of the other blinds by sewing the ends of the strings together and adding slats.

My dad hated spending money but he was always very generous with his time. I can remember as a teenager, my dad would gather the older boys and put us in the back of his pickup truck after school to work on a side job.  Dad would say, “Our neighbor needs a new roof but he can’t afford to pay someone to put it on, so we are going to help out and you boys will get to learn a new trade.”

It could be a neighbor, a family member or even a stranger who needed our help, but we knew we would be working until dark every night, we also knew that there was going to be a serious argument when we finished. That argument always started the same way when our neighbor would say, “Mr. Gilley, how much do we owe you for the help?” “Nothing” my dad would mumble gruffly (as if he was offended by the offer) as he headed toward his old blue pickup.  Our neighbor would shout, “Mr. Gilley I will not take charity, please take something for your trouble.”

My brothers and I would load up the tools and settle down in the back of the truck, because we already knew how this was going to end, our neighbor never had a chance of giving anything to my dad “for his trouble”, because the more he insisted on paying my dad the more stubborn my dad became.”

We always perked up a little when our neighbor would say something like, “If you want take my money, at least let me take your boys down to Pace’s Grocery so I can buy them a Coke and some candy”. But when my dad shot us a stern look we repeated the stock Gilley answer, “No, sir we couldn’t accept anything for our work, besides we may need your help some day and then you can pay us back”.

Those who knew may dad well understood that he didn’t want to be paid back for helping, others had to learn the hard way. Dad’s neighbor from Winchester called me yesterday with condolences and told me how dad helped him complete a botched deck project and managed to get it ready just in time for his daughter’s wedding, but then he said that he made the mistake of mailing a check to dad for his labor. “Oh no” I said, “What happened?”. “Well “, dad’s neighbor said, “He brought the check back over here, stood in my doorway, tore up the check and threw it on the floor, then he didn’t speak to me for the next two weeks.”

My mom and dad started their second life when they retired and moved into the last house that my dad ever built on Tim’s Ford Lake in Winchester, TN. Daddy called me one night from the lake and said, “I think I may have to get Joyce to take me to the hospital.” “Why” I said. “Well my right arm hurts and the pain goes across into my chest”.  “What?” I said, “Why are calling me?  You need to get to the hospital now. That sounds like a heart attack.”  “No,” my dad said, “ I’m pretty sure it’s just a pulled muscle”. “Dad, you are not a doctor, besides what makes you think it’s a pulled muscle?” “Well…….” he said, drawing out each word for maximum dramatic effect, “ I was out in the boat…………The rockfish got into the ‘jumps’………….I started catching fish, one after another until I had 25 fish in the boat………… each one 18 to 20 pounds.  My arm is so sore I may have to fish left handed tomorrow.

Dad enjoyed his retirement and his fishing. He LOVED fishing, he loved talking about fishing, preparing to fish, cleaning up from fishing and woodworking, when the fish weren’t biting. But it wasn’t hard too hard to convince him to come out of retirement for a year to build a new sanctuary for the church where four generations of Gilley’s had worshiped (Chattanooga Valley Church of the Nazarene).

We had one particularly interesting conversation one day soon after Dad started the church project, he called and asked if I had ordered a portable toilet for the job and I told him that I had. He asked, “How much is it?”  “Seventy-Five dollars a month”, I said, “Why do you ask?”   “Cancel it” he said” I’ll do something different” and he hung up his flip phone.  Now, I wasn’t sure what he could do IN LIEU OF a toilet (pun intended).

By the time I got to the job site that afternoon my dad had built an outhouse from scrap plywood, sat it on top of a plumbing clean-out and ran water to it. We had the only flushing outhouse I have ever seen.  I said, “Dad, the rental is only $75 per month for a portable toilet” . “That’s right”, he said, “And $75 per month might be all that some little old lady is able to pledge  toward the building fund.  Now, do you want to the be one who tells her we are taking her life savings and literally throwing it down a toilet……… and a rented toilet at that”

The Winchester house lost most of its luster when my mom died. We eventually had to move my dad back to the Valley when his Alzheimer’s progressed to the point that he got lost going to Walmart and Hardee’s, two life sustaining essentials for my dad.

Not long after we moved dad into his new home in Flintstone, GA, dad started getting lost in his subdivision with its four parallel roads so he made the decision to try an assisted living arrangement, but he couldn’t remember the name of the local assisted living center so he referred to it as the place that Libby said he would like.

Dad’s Alzheimer’s continued to progress over the next several months and although he couldn’t remember what he had for breakfast that morning he could often remember his childhood in vivid detail. I picked him up from Rosewood a few months ago and drove him by the old home place in High Point, just to see if he would recognize anything. Dad sat in the passenger seat of my truck and it appeared that he didn’t even glanced at his old house as we passed by.  Another minute or so passed and he said, to no one in particular, “TEN IS DEAD”.  I thought at first it was the dementia talking, so I waited another minute to see if he was going to elaborate, then I asked, “TEN is dead???”………”What does that mean?”

In a rare moment of clarity, my dad explained, “Your Granddad had a strict rule for his daughters and their dates, the girls had to be home no later than 10:00, so my sister took a pocket knife and carved the number 9 into the cedar tree on the left side of our driveway then she carved the number 10 into the tree on the right side of the driveway.  The next morning”, my dad explained, “When your Granddad asked what time my sister got home from her date she would always respond, ‘Daddy, I came in between 9 and 10 last night’.”

Finally, my dad’s comment made sense to me. There, next to the driveway, was a rotten stump where a large ancient cedar had once stood.

Ten was dead.

“Barry, I don’t want a traditional funeral…”

 

23 The man said,“This is now bone of my bones and flesh of my flesh; she shall be called ‘woman,  for she was taken out of man.”

24 That is why a man leaves his father and mother and is united to his wife, and they become one flesh.               Genesis 2: 23-24 NIV

Shortly after Libby died, I read those two verses in a email I received from Grief Share along with the following commentary which seemed to vividly describe my feelings: 

The pain that comes from the loss of a spouse is much deeper than most people realize because in a marital relationship two people become one flesh and when part of your flesh is abruptly taken away, there is a ripping and a tearing that leaves a huge, open wound. Until you have experienced the death of a spouse, there is no way you can tell someone how deep the hurt is. The Lord says that we are one flesh, and suddenly half of that flesh is torn from us,”

Several months before she died, Libby gave very specific instructions about her funeral, or more correctly, her memorial service, when she said, “I don’t want a traditional funeral with people standing around crying, and I don’t want a bunch ‘funeral songs’ sung, instead, I want upbeat music and a celebration. After the service I want all of my friends and family to visit with one another and eat together.”

Then Libby asked me for a favor that, at the time, I wasn’t sure I would be able to grant: “Barry,” she said, “I want you to tell some funny stories during the service, keep it light and make people laugh. But if you think you are going to cry you need to skip that part.”

I told Libby, “I’m not sure if I can do that, besides, what makes you think I can come with any funny stories?” Libby rolled her eyes at me the way she always did when she didn’t believe anything I was saying.

Made Perfect…

 

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“But Honey,” I whined, “What does it matter if every single tassel on the stupid rug is pointed in one direction ?” The drama was repeated nearly every time I vacuumed the throw rug in the living room because, apparently, the tassels of the throw rug need to be “combed” into one uniform direction by the beater bar of the vacuum cleaner.  To be clear, just in case the sarcasm didn’t work, I don’t like vacuuming and I definitely don’t like combing the tassels,  which is what lead to more than one serious debate.

Ever since Libby and I were married I teased her about her perfectionist tendencies; whether she was remaking the bed because I allowed the sheet to hang over the edge one inch more on the right side than it did on the left side, or making sure the tassels mentioned above were “combed” before the vacuuming was finished. Libby lived by the old adage, “If its worth doing, its worth doing right”.  While I, on the other hand, was blessed with no such tendencies.

Even though I teased her about being a perfectionist by calling her Miss Perfecto on occasion (okay, a lot, I called her Miss Perfecto a lot) Libby was way too humble to believe that anything she did neared the level of perfection and she certainly didn’t like for me to joke that she was perfect.

One day toward the middle of March while taking care of Libby, I was trying to determine what she needed and I asked, “Does your back hurt?”….”No”…” Are you cold?”…”No”… does your belly hurt?” each time she shook her head “No”.  So I said, “Well if you are not hot or cold and nothing hurts then you must be perfect.”  Libby shook her head, frowned at me with a disapproving look that I had seen many times in our 35 years of marriage, and said,  “If I were perfect then I wouldn’t be sick and in this hospital bed.”

Later that same night I told Libby, “I feel so helpless, I wish there were something more I could do. I am so sorry this is happening to you.” Libby turned her head toward me (again with the frown) and said, “Barry, don’t feel sorry for me, I have the easy part, you’re the one who has the hard job.”

Incredulous, I asked, “What do you mean by that?”  Libby’s answer still echos in my ears, even I as write these words exactly two years later, ” I mean,” she said, “My part is easy, all I have do is lay here while you take care of me for a few more days and then I will be in heaven, but you have to stay here and go on living without me.”

On March 25th it was just past midnight when I made the difficult decision to tell Libby something that, at the time,  I didn’t really think she was able to hear, much less comprehend, becasue by then she had been asleep for three days solid. I remember saying, “Libby, I love you but you need to know that I will be okay.  You were an amazing mom to our boys and although they will miss you, they will be fine. Bethany and our new granddaughter will be okay as well, you have fought hard but you don’t need to keep fighting for us.”

That was it, no long speech, no change in Libby’s expression and absolutely no indication that she heard it; instead there was a calm, spirit-filled peace that filled the room and I just remember thinking we would both rest better that night.  I leaned over to tuck in Libby’s covers but as I did the loose board next to her bed squeaked and without ever opening her eyes, Libby strained upward for her kiss.

 Caring Bridge entry March 25, 2014:   … This morning a few minutes after 5 AM Libby was made PERFECT… 

 

 

The Kiss

me and Libby

Several years before Libby was diagnosed with breast cancer we remodeled our house and replaced the carpet in the living room with hardwood flooring, the only problem was that a squeak developed in one section of the living room.  The culprit was a loose piece of sub floor that now happened to be right beside Libby’s bed; the exact spot where I put my right foot nearly every time I leaned over to kiss her.

Regardless of how deeply Libby slept or how much pain medication was given, the Pavlovian response to the creaking board was always the same; Libby would turn her head toward me for a kiss and the scene would be repeated dozens of times every night.

In some ways my attempt to sleep during the three months of Libby’s Hospice care was like that of a mom with a newborn unable to get into REM sleep. Similarly, in order to be close to Libby, I either slept in my recliner next her hospital bed or about twenty feet away in my (or rather OUR) bed, making constant trips each time she called or needed a drink. As exhausting as it was to get up dozens of times during the night to check on Libby, it was far worse when I did sleep soundly becasue then I woke up in a panic realizing that I had gone an hour or more without checking.

On the same night following my failed attempt to snuggle with Libby and the subsequent Taco incident with the hospital bed, she was fully alert and wide awake.  Libby took my hand and said, “Thank you for taking care of me, I love you”.  Embarrassed by the attention, I looked down at our hands and asked, “Do you remember the first time we held hands?”  Libby didn’t have to answer and I could tell from the confused look that either she truly didn’t remember that particular “first” in our relationship or the cancer had stolen that memory as well.

“We were on our way home from a date,” I began, a little too proudly, “We were crossing the bridge over Chattanooga Creek on South Broad Street in my ’79 Camaro.  I remember the exact spot becasue we could smell the leather from the Scholze’s Tannery where new saddles sat on the window sills.” On a roll now, I continued my narrative, ” I used one of my irresistible lines which went something like, ‘Libby, you have such small hands, put yours next to mine and lets compare’. Then I closed my grip and I held on until we pulled into the Flintstone Baptist Church parking lot next to your house.”

I was so proud that I had remembered such a detailed account from our dating years and even though it was now dark in the house, I was sure that Libby rolled her eyes when I described my move to hold her hand.

When finished I waited for Libby’s response but then I realized that she had fallen asleep somewhere during my monologue (probably about the time I made my “move”).  Trying not to wake her, I reached over Libby’s hospital bed to tuck her in but my right foot landed on the creaking board. Unconsciously Libby pursed her lips and strained in the direction of the squeak to get her kiss and our nightly ritual began again.

 

Our Love Song

 

Following Libby’s final oncologist’s appointment we settled into a routine with Hospice Care coming to our house twice a week and many of Libby’s dear friends volunteering to sit with her while I went to my office in a futile attempt to work.

By the end of February the cancer and the pain medications began to take their toll on the amount of conscious time that Libby had for visitors as I weighed the needs of Libby’s failing health against the well-intentioned desires of those wanting to see her.  Weekends were especially busy around our house and Sunday February 23 rd was no exception as our friends Corey and Andrea had driven in from Nashville to see Libby but she was in a deep sleep by the time they had arrived.

Corey and Andrea Garcia were college friends of Nathan and Bethany while at Trevecca Nazarene University.  Nathan and Corey’s friendship went back even further to kindergarten in our church when Libby was their teacher. Libby was a self-appointed surrogate mother to both Corey and Andrea during their college years as she encouraged and counseled them both during their courtship, marriage and Andrea’s fledgling music career.

Weeks before their visit, I asked Andrea if she would be interested in writing a song about Libby to tell our story.  I had written an outline of sorts which described the “new love” during our dating years and how it changed into something much deeper as time went on. Then when faced with horrible news, how that new love turned into a “blue love” as both love and faith were tested.  I went on to say that real love is not always some warm fuzzy feeling portrayed in the movies, it is a choice to love that one makes everyday.  Now, it was obvious that I would never be mistaken for a songwriter so I left my ramblings with Andrea.

At 9:30 on that Sunday evening after Andrea and Corey had gone out for coffee with Nathan and Bethany, Libby woke up more responsive and more alert than she has been in weeks and asking, “Where is everybody?” I explained that it was late on a Sunday night and although a lot people had come by to visit, everyone was gone now.

After telling Libby the names of all of her visitors I explained that she had just missed Corey and Andrea so she asked me to call them. Within fifteen minutes Nathan, Bethany, Corey and Andrea arrived as Andrea pulled me aside before going into see Libby and said she had finished the song we had discussed and she asked if she could play it for her.  I told her the timing was perfect and that she was very alert.   The following video was recorded on that Sunday night using my cell phone then edited later to add photos:

 

I wrote this on the Caring Bridge entry that night after everyone had left, “I believe we have been given this time to say goodbye to someone that in my completely unbiased opinion, is the best wife, mother, teacher, counselor, prayer warrior, mentor and friend this world has ever seen.”

The Beginning of a Dream

 

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Libby’s love for children has never been disputed and that love caused her to constantly look for ways to engage all children, ensuring that none were ever overlooked, which is why she commented on more than one occasion that our church needed a playground.  After visiting area playgrounds during the summer of 2013 and doing additional research, Libby’s vision of a playground soon faded when we learned that the costs were far more than either of us expected with even the smallest playgrounds costing tens of thousands of dollars.

Fast forward six months and Libby was still struggling to recover her health while doctors tried to determine the exact cause of her horrible headaches and the loss of a third of her body weight. Because of Libby’s precarious health I had to limit the number of visitors which created a sense of helplessness among our friends and family and left many of them wondering how they could help.  Suggestions were made to hold bake sales, road blocks and even a 5 K run, all to raise money for Libby.

My initial impulse was to graciously decline any fund raising efforts for Libby since we had good insurance and money for the deductibles.  What I finally came to realize was that it was never about the money, the fundraising effort gave our friends and our community a purpose and and a feeling that they were helping contribute to Libby’s recovery. That’s when I remembered the discussions about the playground during the summer and so without asking for Libby’s permission, I made a few phone calls, launched a fund raiser webpage and formed a non profit called “Libby’s Living Legacy” to begin collecting money to build a playground to honor Libby’s love of children.

After the proverbial reins were released people began calling or texting with ideas on how they wanted to help and with little more than an, “Okay by me”, Libby’s Living Legacy fundraisers began springing up throughout the community of Chattanooga Valley. It was an amazing outpouring of love for someone who had touched so many people in our community.

An incident happened one day as some of the students from Libby’s children’s program lined up to each hand over a dollar of their allowance to help build a playground for Miss Libby. I hugged each little girl in turn thanking them for their gift but the youngest stood off from the others and nervously looked down at her feet shuffling back and forth.  I looked over and asked, “Can I get a hug?”  She shook her head “No”. So I asked, “Why not?” and she answered shyly, “Because I don’t have any dollar”.  (She got the biggest hug ever until she said, “You are squeezing me too hard, I can’t breathe”).

It was the gifts of pennies and dollars from children and the $9.67 earned by selling lemonade during a Saturday afternoon that I remember more than the corporate sponsors and large donors as this fundraiser started to pick up some serious momentum.

Within days of starting Libby’s Living Legacy the dream of creating a community playground began to develop a life of its own, meanwhile, still in the hospital, Libby was still fighting for hers.

 

The Last Great Day

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There is a common term within the cancer community or more specifically, within the terminal cancer community, often called the last great day. The problem is (or maybe it is a blessing) that by definition neither the patient nor their caregiver know that they are experiencing the last great day while it is happening:

Because of Libby’s declining health by end of her first week in the hospital we called all of Libby’s sisters and asked them to come in Saturday for what we thought might be their last opportunity see their sister but by the time they arrived things had changed.

When Libby woke up on Saturday morning she was not the same person that she had been the day before, she was alert and free of any pain or nausea. I explained to Libby that her mom and all of her sisters would be there soon which buoyed her spirits even more and she said, “If everyone is coming I need to wash my hair and get a shower”. I cautioned her about doing too much too soon but she was already out of bed and towing her IV pole toward the bathroom.

Now, to put things into perspective, Libby had barely put three words together in a sentence since she was admitted to the hospital seven days earlier.  The pain was such that she spent most of the time with a damp rag covering her face and the total extent of our conversations consisted of whispered two-word sentences such as “Morphine please” or “Bathroom, please”.

But on that Saturday it was as if Libby had awakened in a new body, she was giving me instructions on which set of pajamas to get out and how she wanted her mom to fix her hair and makeup.  In addition Libby said she was tired of being in a hospital bed, she wanted to sit in a chair and she was ready to have the IV taken out of her arm because she didn’t need anymore pain or nausea drugs.

Libby’s headaches and five seizures made Friday one of worst days that I had ever experienced, but Saturday, she was having a great day. Then, in the middle of getting ready, Libby looked up at me with a quizzical look and I was sure that she was feeling the effects of all the day’s vertical activity, instead she said “How long has it been since I’ve eaten?  I’m starving!” I told her it had been almost a week since she had any food but I would check with the nurse immediately to see if they could bring up some soup or dry toast.  Libby turned up her nose at my offer saying, “Toast? I want some real food”.  I made a few other suggestions such as a Subway, although I really thought that even a plain turkey sandwich would be pushing our luck.

Her mom and sister had arrived by now and Libby was being tended to as if she were a movie star about to be called out on set. The pampering may have brought out Libby’s inner Diva because she turned up her nose at the Subway sandwich suggestion and said, “You know what I really want?” I was so happy to have my wife back I said, “You name it and I’ll get it.”  Libby said, “I want some Champy’s chicken.”

In theory I was willing to get Libby anything she wanted but I had cleaned up enough vomit in the past week to know this was a bad idea so I gently questioned the wisdom of introducing fried chicken to a stomach that had not seen anything other than ice chips for a week. Once again Libby frowned and said, “Barry, you asked me what I wanted…you said name it… and what I really want is some Champy’s chicken.”

I left the oncology floor of the hospital to get Libby some chicken but not before she shouted, “And don’t forget the spicy dipping sauce”.  “Yes, dear” I said out loud, then under my breath, “I am going to have a real mess to clean up…”

I bought enough chicken to feed our family, the nurses on the oncology floor, the doctors, assorted residents and most of the patients (or at least the ones who could keep it down). Our family sat around most of the afternoon telling jokes, reminiscing, and eating way too much fried chicken (with spicy dipping sauce).  Libby never did get sick as she sat in a chair the entire day while we feasted and used the hospital bed for our dinning room table.

As it turned out I was felling a little guilty for “calling the family in” because when the doctor made his rounds that afternoon he said, “Wow! You look great today! It looks like that experimental drug finally got out of your system.  If things continue like this, you are definitely going home in the morning, little girl”, Then the doctor looked over at the bed he asked, ” Is that Champy’s chicken?” Libby handed him a cup of dipping sauce as he joined our party and we all celebrated this new answer to prayer during our incredibly awesome, really good, very great day!