Epilogue

According to the metrics from the WordPress website which hosts all of the Libby’s Living Legacy stories, most people who read these posts only see the current issue but the following link will give you access to every post, that is, if you care to scroll down through the long list:  https://libbyslivinglegacy.com/

Soon after Libby’s memorial service I began writing about our relationship, beginning with our first date. The process of writing and the resulting stories served dual purposes:  altruistically, as a gift  to our grandchildren and selfishly, for their therapeutic value to me; both purposes have been accomplished and I really appreciate the encouragement, notes and letters.

Epilogue

Libby was always a sucker for a Hallmark love story movie, so as recompense for watching sports with me, I suffered through more than my fair share of the one and a half hour, happily-ever-after, chick flicks.

One movie in that genre was entitled Love Comes Softly which was released in 2003 based on the book by the same name from author Janette Oke.  The Christian themed movie quickly became Libby’s favorite and the release of each new movie sequel (and few prequels) was an event not to be missed in our home. Set in the 19th century as the West was being homesteaded, the original movie had a predictable plot centered around a widow and a widower whose relationship begins to develop because of their common loss and their need for survival.    During one memorable part of the movie, the widower’s 5-year-old daughter notices that her dad’s grief has slowly subsided and as he begins to enjoy life with his new family she comments, “My Daddy got his laugh back”.

Every couple, I am sure has them, those quirky sayings shared with one another which make absolutely no sense to others because they weren’t privy to the back-story. I am confident the same thing happens in many relationships just like it did between Libby and I because after watching a movie together, one of us would repeat a line from the movie, so many times in fact, over the next few weeks, that it became woven into a our daily vocabulary. For instance, Libby would often talk about a friend who had been mourning and say, ” I sure hope she gets her laugh back”.

Thirty five years of marriage changes a person, for better or worse (pun intended). Each person’s individual beliefs, goals, temperament and even personality are melded together and both parties eventually assume different (hopefully better) beliefs, goals, temperament and personality.  Those quirky little sayings shared by a couple are as much a part of this new life as the first day of school or the first time you sang in front of the church. Some of us who “married up” as they say, were blessed to be in a relationship in which the benefits received from the relationship far outweighed the benefits given and the subsequent changes are monumental.

Several weeks before Libby died we were discussing how much we both have grown and changed in our relationship with each other, she was thinking more and more about her future, our boy’s future and my future. Libby worried about our boys and how they were they going to be able to handle the loss of their mother; that’s when Libby looked at me and said,  “I’m sorry that I will not be around for our boys, but I am also sorry that I will not be around to grow old with you……”

My response to her melancholy dialogue was to try to get her to talk about something else, so I jumped in with, “Now, Libby, don’t be talking like that….you’re not going anywhere for a long time….” .  But this time Libby stopped me in mid sentence and continued her thought by asking, “……I wonder how long it will take……..after I am gone……..before you to get your laugh back…….?”

 

Third Letter to Libby

Hey Libby,

Well, I guess you know by now that your mom is no longer down here on earth, she was ready to leave but she is really going to be missed.  I am assuming that death looks completely different from your perspective than it does from here; you guys were probably eating and rejoicing at a banquet while were crying at a funeral.

Meanwhile, back here on earth (more specifically Flintstone) one of our cats (Gato) ran away and so now I’m down to just one cat (Ring). You know that I never really wanted a cat anyway and its obvious that Ring doesn’t really like me either, but our two granddaughters are fascinated by “Kitty Kitty” so I keep buying cat food and putting up with the dead critters that she and brings up on the porch.

Speaking of things that smell, how old is that cereal in the bottom of the pantry?

As you can see by the picture (unless photos get blocked up there) we had some fun with your car, actually it was Jerod’s idea to lift it, put on big tires, a winch, a luggage rack and some cool pink graphics so we could raffle it off to help build the playground that we had talked about.

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Between raffling your car, donations, chili suppers, bracelet sales and corporate sponsors we raised over $80,000 for the playground. Maybe you’ve seen it just south of the church? Wait, I forgot, you never liked for me to give you directions that involved North, South, East or West…… just look between the gym and ball field where the gravel parking lot used to be, you can’t miss it.

Although many of the children who play on the Libby’s Living Legacy playground never met you and can’t fully comprehend the amount of work involved, they do know two things,  it’s Miss Libby’s Playground and it is there because “Miss Libby loved children”.

I told you in my last letter about our 40th reunion of Chattanooga Valley High School (GO Eagles) coming up soon. The organizing committee for our reunion will hold a silent auction and donate the proceeds to your playground but its been a struggle getting everything together especially since you were the one that organized all of the reunions in the past.  Do you have a file somewhere with all of that stuff in it?

As I mentioned above Nathan and Bethany have given us two two gorgeous granddaughters, Elizabeth Joy and Lydia Grace.  I often daydream about you interacting with them and how many kisses you would have given them by now. The problem is, I’m loosing my ability to imagine your reactions when I see the girls do something new and different.  That could be good, I guess, if it means that I am progressing further through the grieving process or it could be bad if it’s just old age.

Elizabeth was two years old in June and her mom and dad have been showing her your picture and telling her about her grandmother “Gibby” (That’s my name for you, again from one of my blog posts, maybe you saw it?).  The girls will know what their grandmother Gibby looks like from all of the pictures and when they are old enough to read some of these stories, they will learn about their grandmother’s character, beliefs and love of others.

Lydia and Elizabeth in wagon

You would be very proud of our boys, they are doing great and both have been very supportive as I have struggled to regain my equilibrium for the past two and a half years. Jerod took over a lot of responsibility in the company which helped to keep me out of the mental hospital (so far). Nathan has started his residency in Murfreesboro and for the first time since kindergarten at CCS there is no more TUITION!

Did you ever write down your beef stroganoff recipe?  Not that I would cook it because except for some fried bologna for a sandwich and scrambled eggs for Elizabeth, I haven’t used the stove. Don’t even ask about the oven, it’s as clean as it was the last time you saw it.

Everyone here misses you terribly, although they don’t come right out and say it to me. I’m sure its because they are concerned that if they bring your name up it will upset me or maybe “set me back”. Who knows, maybe they are right, besides no one wants to see a grown man cry.

Speaking of crying, are there really, “no more tears” in heaven and are the streets really made of gold or is that just a metaphor?

I guess my dad has had time to  fill you in on the recent happenings in our little circle of friends and family. But then, again, you should know that dad had Alzheimer’s during his last two years here on earth so you may want to double check his facts since he was known to say some outrageous things just before he left here and most of them only happened in his head.

I’ll say bye for now.

Love you more….

Barry

 

Letter Two

Second letter to Libby:

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Dear Libby,

Its confession time; now it may come as a surprise to you but during our marriage when we were sitting around the house and you were talking to me, I wasn’t always listening intently to every single word that you were saying especially if there was a football game on TV.

Shocking, I know.

Case in point; I vaguely remember remarks about colors – whites- bleach – temperature and other things about laundry that you thought  I should know. Well shortly after you left, although its not really my fault (blame it on ESPN) I somehow ended up with pink underwear, tie-dyed dress slacks and a very large iron shaped logo melted into the lapel of my synthetic, wicking “no iron” shirt.

Although my laundering skills might be suspect, on the bright side I have lots of new clothes and more grease rags than I will ever use. Now, obviously there is no reason to cry over “spilt” milk, besides if  I used these letters to try and make amends for all of the foolish things I have done there wouldn’t be room for me to write about the things that have been happening.

Speaking of current events,  do you remember what we were doing at this time four years ago?  (Of course, you probably posses total recall) but in case you don’t, we were watching the 2012 London Summer Olympics. I can’t help but think of those times when we sat on the couch with a bowl of popcorn between us watching gymnastics, swimming and track and field.  Spoiler alert, the US girls gymnastic team is stronger than ever and Micheal Phelps has more gold than the Aztecs.

In the normal letter writing process this is where I would say, “Well, I’m sure you already read my first letter” but the truth is I have no clue if you even received my first letter.  It gives me a headache when I try to understand the relationship between heaven and earth. For all I know, you may have seen this letter as I typed it and maybe you witnessed the Olympics and my laundry debacle? Hey, can you see the winning lottery numbers?

Speaking of writing letters, I now have blog! Again, shocking news I know. Of course, being the author of a blog isn’t exactly a great accomplishment because if you have the ability to launch Windows Explorer, you can start a blog.  But can you believe it? Me, the guy who hated English Composition class in college is now writing without being forced to do so.

I mentioned the blog because I often look back through old pictures and letters to reminisce about our life together and sometimes  post stories about you. OK, that’s not totally true, because every story I post in my blog is about you.

A few months ago I told the story about the rainy Sunday afternoon during that time when we were remodeling the master bath. I told my blog readers how we sat together on our couch and you began crying.  If you remember, I asked why you were crying and you said, “I’m afraid the last scan is going to show that the cancer is back and I’m never going to get to sit in my new tub!”  I tried consoling but you recoiled from my hug, shook your finger in my face and said, “…and if you think that SOME WOMAN is going to sit in MY TUB, you’ve got another think coming mister”.

Well, since its confession time, some “woman” has been in your tub several times:

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In other news, we are planning our 40th high school reunion, can you believe it? We have been passing around yearbooks and old photos at our planning sessions and telling stories about dances, homecoming and our favorite teachers. I really feel old when the conversation turns to kids, grand kids and even great grand kids. That got me to thinking, are you getting older in heaven or will you be 56 when I get there? Again, I am struggling with the whole dynamic of time and space between heaven and earth.

But wait, what if you are not aging and what if I don’t die until I’m 95?

How do you feel about older men?

Love, Barry

 

Letters to Libby

Libby battled breast cancer for five relatively healthy years but her health declined rapidly in the last three months of her life. During those final months it was painfully obvious to both of us that although she won a few battles she was not going to win the war.  Because of the time we had together toward the end everything that needed to said between us was said, but that hasn’t stopped me from dreaming about spending just one more day with her.

Now, I’m not delusional enough to believe that God will give me a day with Libby; I am, however, sufficiently deluded enough to write a few letters to her:

Part I

Hey Babe,

There are so many questions that I need to ask, but I fear that this communication method is going to be a little one-sided, if in fact you even get to read this. It may be like that marriage conference that we attended where we were asked to write out our concerns and exchange letters instead of talking to each other. That’s where we learned that the very act of writing things out often helps the writer more than they help the reader.  Could that be the case here?

Things have been really busy around here since you’ve been gone and I wanted to fill you in on some of the happenings.  I’m sure you have missed me but I’m going to predict that you have not finished talking to everyone in heaven that you wanted to talk with, even after 28 months, in fact you may not have even finished talking with your dad yet.

After you left in the early morning hours of March 25th, two years ago, everything changed for me down here (and by “down here” I mean of course, down here on earth… not …. well…  you get the idea).  I’ve had the normal depression, loneliness, anger and jealously of other couples (maybe I still do ) but the most difficult thing that I have had to overcome is the urgent need to call you immediately following an exciting event that I hear or see. It took months before I stopped reaching for my cell phone to call you when I heard something that I knew you would enjoy hearing.  I miss that child-like excitement and pure joy that you always showed when good things happened for your friends or family.

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Since I can’t pick up that cell phone and call, I decided to write a letter and well, I guess I just need to start at the beginning:

That Celebration of Life service that you requested was a tremendous success. It was standing room only in the sanctuary and we added video screens in the gym so those in the overflow area could watch the service.  I may have been experiencing some shock during the visitation portion of the service because with each new face that I saw I thought, “I need to tell Libby that they are here, she will want to talk to them”.

After the service I began looking through old pictures and letters that we wrote to one another. That’s when I decided that our grandchildren should know their grandmother and “our story” so I began writing about how we met, our first date, etc. which eventually led to a blog. Maybe you’ve even read the blog?  See, once again, I’m not sure what you guys can see and what you can’t see.

I was writing in my blog the other day about the arguments we used to have, some petty and some were serious. Although we both matured a lot in our 35 years of marriage, in the beginning, at least, we both insisted on getting the last word in and always being “right”. In one of our “discussions” when you thought I was taking you for granted, you made the comment, “If anything ever happens to me you will be find someone else, forget about me, and be remarried within six months!”. At the risk of once again sounding petty and immature I have to say: ” You were wrong…I won that one! ”

Since we are keeping score (or at least I am keeping score) I also remember a discussion we had one night just before you left when I said, “Libby, I’m so sorry that this is happening to you, I wish there was something more I could do.”  I’ll never forget your reply:  “Are you kidding me?” you said, ” I have the easy part.  I just have to lie here and let you take care of me for a little while longer and then I’ll be in heaven, but you have to stay here and live without me”.

OK, I’ll have to give you that one, you were right. Although I’m not sure how hard it was to die, living without you has been harder than I ever thought it could be.

You also used to tell me that I was way too independent and that I really didn’t even need a wife. Well, you were wrong on both points becasue I can tell you from experience, independence is not what its cracked up to be and although I didn’t always say it, I always needed you.

Now (and this is totally off of the subject) speaking of needing things, where did you put the vacuum cleaner bags? I’ve looked in all of the obvious places.

There are so many things that I would like to talk to you about, some are monumental things like two of the most gorgeous granddaughters in the world who have their “PaPa Bear” wrapped around their fingers. Then there are the not-so-monumental things that I need help with, such as: Is there some kind of code to match up the right Tupperware top with the bowl or do I have to try every single, stupid, plastic top in the stupid Tupperware drawer?

Can you see us down here? I’m not sure if you guys can see us moving about on this earth? There are versus in the Bible that are very likely meant to be a mystery, but I have read about “a great cloud of witnesses” so there is definitely something is going on up there. Anyway, if your can see us, I’m sure you noticed that the wedding ring which you put on my finger, is now gone. But wait, there is a story:  You see, Nathan put his wedding ring into the pocket of his surgical scrubs and then forgot about it when he threw them out, so I thought you would approve if I gave him my wedding band.  It still feels awkward and many times I feel guilty not wearing a ring but I guess I’m slowly getting used to it.  Sorry.

A lot has happened in 28 months and I have a lot more questions and things to tell you, including updates on our church, our friends and even politics ( You will not believe who is running for president! ).  I’ll write again soon.

I love you more,

Barry

 

 

 

 

 

 

 

 

A Tribute to My Dad

Pinkie Around Christmas 2010 183

My dad, Maurice Gilley, began having health issues about the same time as Libby’s cancer returned, in fact, Libby and I were visiting the assisted living facility with my dad on the day before Libby was admitted to the hospital.  My dad’s Alzheimer’s took his mind away from us over the next two years while Libby’s cancer took her away from us over the next three months. The following is the tribute that I delivered during my dad’s funeral:

I met an old man in 1985 who, as a young man, knew my dad’s dad in the early 1900’s and he told me about a time when my Granddad (L.H. Gilley) was building houses in Chattanooga and St. Elmo, then selling them to war veterans returning home from Europe. My Granddad eventually became a one-stop-shop for the first-time home buyer, personally financing dozens of houses so the buyers didn’t have to go to the bank for a loan.

My friend also said that by the 1920’s L.H. Gilley, had become one of the wealthiest men in Chattanooga; at least until early September of 1929 when he was warned by his banker to gather as much cash as possible because something “bad” was about to happen. As the Great Depression swept the country, the housing market crashed and Granddad lost his fortune, one house at a time, becasue tenants were unable to repay their home loans.

With a few hundred dollars to his name, my Granddad left Chattanooga and moved his family fifteen miles South to High Point, GA where he bought a farm and few animals, just to feed his family. That depression left an indelible mark on my Granddad, changing him from a freewheeling confident businessman to a cautious, somewhat cynical man, who believed everyone was one bad decision away from poverty.

I had heard bits and pieces of that legacy growing up and I remember telling my Granddad with a childish whine in my voice, “You should have made those people pay you back for those houses”. It was difficult to get him to talk about it but I kept pushing the issue until he answered, “You don’t understand, no one had any money, no one. What I had was eight children to feed, I needed beans, corn and milk, not money, besides those poor people living in my houses needed their money to feed their kids.  We were all just trying to survive.”

My dad, Maurice Paul Gilley was born into this, hardworking, strictly disciplined, but ironically compassionate family in December of 1928 just as The Great Depression was ending; its influence, however, would continue to shape him and our family, for generations.

Libby used to tell a story about how resourceful my mom and dad were and how cautious they were with their money; my parents had just moved into their new house in Winchester and decided that the seven tall windows facing the lake needed window blinds. Walmart had some blinds on sale for $9 each, but they were six inches too short.  Custom blinds would have cost $45 each so my mom and dad bought the cheap blinds along with one extra blind, then they took out enough string and slats from the extra blind and lengthened each of the other blinds by sewing the ends of the strings together and adding slats.

My dad hated spending money but he was always very generous with his time. I can remember as a teenager, my dad would gather the older boys and put us in the back of his pickup truck after school to work on a side job.  Dad would say, “Our neighbor needs a new roof but he can’t afford to pay someone to put it on, so we are going to help out and you boys will get to learn a new trade.”

It could be a neighbor, a family member or even a stranger who needed our help, but we knew we would be working until dark every night, we also knew that there was going to be a serious argument when we finished. That argument always started the same way when our neighbor would say, “Mr. Gilley, how much do we owe you for the help?” “Nothing” my dad would mumble gruffly (as if he was offended by the offer) as he headed toward his old blue pickup.  Our neighbor would shout, “Mr. Gilley I will not take charity, please take something for your trouble.”

My brothers and I would load up the tools and settle down in the back of the truck, because we already knew how this was going to end, our neighbor never had a chance of giving anything to my dad “for his trouble”, because the more he insisted on paying my dad the more stubborn my dad became.”

We always perked up a little when our neighbor would say something like, “If you want take my money, at least let me take your boys down to Pace’s Grocery so I can buy them a Coke and some candy”. But when my dad shot us a stern look we repeated the stock Gilley answer, “No, sir we couldn’t accept anything for our work, besides we may need your help some day and then you can pay us back”.

Those who knew may dad well understood that he didn’t want to be paid back for helping, others had to learn the hard way. Dad’s neighbor from Winchester called me yesterday with condolences and told me how dad helped him complete a botched deck project and managed to get it ready just in time for his daughter’s wedding, but then he said that he made the mistake of mailing a check to dad for his labor. “Oh no” I said, “What happened?”. “Well “, dad’s neighbor said, “He brought the check back over here, stood in my doorway, tore up the check and threw it on the floor, then he didn’t speak to me for the next two weeks.”

My mom and dad started their second life when they retired and moved into the last house that my dad ever built on Tim’s Ford Lake in Winchester, TN. Daddy called me one night from the lake and said, “I think I may have to get Joyce to take me to the hospital.” “Why” I said. “Well my right arm hurts and the pain goes across into my chest”.  “What?” I said, “Why are calling me?  You need to get to the hospital now. That sounds like a heart attack.”  “No,” my dad said, “ I’m pretty sure it’s just a pulled muscle”. “Dad, you are not a doctor, besides what makes you think it’s a pulled muscle?” “Well…….” he said, drawing out each word for maximum dramatic effect, “ I was out in the boat…………The rockfish got into the ‘jumps’………….I started catching fish, one after another until I had 25 fish in the boat………… each one 18 to 20 pounds.  My arm is so sore I may have to fish left handed tomorrow.

Dad enjoyed his retirement and his fishing. He LOVED fishing, he loved talking about fishing, preparing to fish, cleaning up from fishing and woodworking, when the fish weren’t biting. But it wasn’t hard too hard to convince him to come out of retirement for a year to build a new sanctuary for the church where four generations of Gilley’s had worshiped (Chattanooga Valley Church of the Nazarene).

We had one particularly interesting conversation one day soon after Dad started the church project, he called and asked if I had ordered a portable toilet for the job and I told him that I had. He asked, “How much is it?”  “Seventy-Five dollars a month”, I said, “Why do you ask?”   “Cancel it” he said” I’ll do something different” and he hung up his flip phone.  Now, I wasn’t sure what he could do IN LIEU OF a toilet (pun intended).

By the time I got to the job site that afternoon my dad had built an outhouse from scrap plywood, sat it on top of a plumbing clean-out and ran water to it. We had the only flushing outhouse I have ever seen.  I said, “Dad, the rental is only $75 per month for a portable toilet” . “That’s right”, he said, “And $75 per month might be all that some little old lady is able to pledge  toward the building fund.  Now, do you want to the be one who tells her we are taking her life savings and literally throwing it down a toilet……… and a rented toilet at that”

The Winchester house lost most of its luster when my mom died. We eventually had to move my dad back to the Valley when his Alzheimer’s progressed to the point that he got lost going to Walmart and Hardee’s, two life sustaining essentials for my dad.

Not long after we moved dad into his new home in Flintstone, GA, dad started getting lost in his subdivision with its four parallel roads so he made the decision to try an assisted living arrangement, but he couldn’t remember the name of the local assisted living center so he referred to it as the place that Libby said he would like.

Dad’s Alzheimer’s continued to progress over the next several months and although he couldn’t remember what he had for breakfast that morning he could often remember his childhood in vivid detail. I picked him up from Rosewood a few months ago and drove him by the old home place in High Point, just to see if he would recognize anything. Dad sat in the passenger seat of my truck and it appeared that he didn’t even glanced at his old house as we passed by.  Another minute or so passed and he said, to no one in particular, “TEN IS DEAD”.  I thought at first it was the dementia talking, so I waited another minute to see if he was going to elaborate, then I asked, “TEN is dead???”………”What does that mean?”

In a rare moment of clarity, my dad explained, “Your Granddad had a strict rule for his daughters and their dates, the girls had to be home no later than 10:00, so my sister took a pocket knife and carved the number 9 into the cedar tree on the left side of our driveway then she carved the number 10 into the tree on the right side of the driveway.  The next morning”, my dad explained, “When your Granddad asked what time my sister got home from her date she would always respond, ‘Daddy, I came in between 9 and 10 last night’.”

Finally, my dad’s comment made sense to me. There, next to the driveway, was a rotten stump where a large ancient cedar had once stood.

Ten was dead.

Déjà Vu All Over Again

IMG_5280Things happened quickly after Thanksgiving 2012: The metastasized breast cancer was biopsied, analyzed and charted, Libby had another port implanted and the drug protocol was established.  On December 17, 2012 we began Chemo Round Two and I posted  the following message on Libby’s Caring Bridge website:

I have been a “fixer” all of my life and I have the accumulated tools and workshop to prove it.  When our boys were little they naïvely thought their dad could fix anything that they broke and believe me, they broke a lot.  I inherited that “fixer” mentality from my dad who saved everything and was capable, in my mind at least, of fixing anything (are you sensing a pattern here?).  As a boy when trying to repair a broken toy I always wanted to give up and throw it away, but my dad’s response was always the same; “Somebody, somewhere came up an idea, designed it, built all of the pieces and assembled it.  The only thing you have to do is repair one little piece to make it work again.” 

As a “fixer”  it has always been hard to accept help from others and today was no different as I sat idly by while nurses prepared and administered Libby’s afternoon “cocktail” of Taxatere, Herceptin, Perjeta, steroids and anti-nausea drugs, hoping and praying that they would be able to fix the only girl that I have ever loved.

Caring Bridge entry by Barry 12/17/12

We had planned to celebrate my birthday after Libby’s chemo treatment but she was soon confronted with nausea, dizziness, metallic taste and loss of appetite, similar to the symptoms that she had experienced during her first round of chemo four years earlier, so we decided to postpone the birthday celebration.

A few nights later as we were getting ready for bed, Libby was scratching her head with both hands and said, “I just can’t figure out why my head keeps itching”.  Then, as if a light went on, Libby raised her eyebrows and smiled awkwardly as we both remembered, at the same time, that the itching meant her hair was getting ready to fall out just like it did four years earlier.

Without much discussion nor emotion Libby said, “OK let’s get this over with.” We walked into the bathroom where I took out our trusty Wahl clippers, attached a black plastic 1/4″ guard and I gave Libby a buzz haircut, but instead of buzzing it all, I left a 2 inch wide strip of relatively long hair on the top of her head forming the perfect Mohawk.

Readers will have to take my word for this because as I stepped into the other room to get my camera and record Libby’s new hair style, she found a mirror and…well… lets just say that she was not excited about her new look.  I calmly and logically explained that there was no reason to “go on the warpath” because I could easily correct it.  (It was at this point that insights gained after 33 years of marriage kicked in and I decided not to take that picture). Libby insisted that I cut the remaining hair immediately becasue she said, “What if the rapture comes and I am ‘caught up together with them in the clouds’ looking like this?”.

 

Biking to Florida

“Wow Barry, what happened to you?  You look different!”  That was Libby’s reaction in the fall of 1972 as we both began our freshman year of high school. Apparently, I had changed since leaving Chattanooga Valley Junior High three months earlier thanks, in part, to a short growth spurt and a long bike ride.

When the 3:15 bell rang on our last day of class in Junior High my mom drove me to Nashville, Tennessee where I met up with a group of guys to begin a seventeen day, 1000 mile bicycle ride to Miami Beach, Florida.  For a year I had been planning, exercising, and raising money for a trip that I was scheduled to take with these guys who had come from various churches throughout the United States. The forty bicyclist represented twenty-five different states and we were scheduled to be at the Church of the Nazarene General Assembly which was being held in just over two weeks at the Miami Beach Convention Center.

Collectively our bicycling group was called “The Spokesmen” and along the way we sang, spoke and stayed in churches as we biked through Tennessee, Georgia and down the coastline of Florida to Miami. In addition to bicycles, our caravan had a portable kitchen, motorcycle escorts, vans and mechanics traveling with us as we pedaled our “state of the art” Schwinn Continental ten speed bicycles between 65 and 110 miles each day.

During that summer in Florida between Junior High and High School I grew 4 inches and added 25 pounds to my skinny  5″-9″ and 120 pound frame which may explain why Libby claimed that she barely recognized me when she asked the question, ” Wow what happened to you?”

After the bike ride I stayed several more weeks in Florida with family friends where we spent most days water skiing or surfing. Besides the physical changes that came with an adolescent growth spurt, 1000 miles of biking, lots of time in the water and copious amounts of food; looking back now, I realize how much confidence, self-discipline and perseverance that I gained as well.

Six years later when Libby and I were engaged to be married, she saved up her money from her Red Food Store cashier job and purchased an expensive Italian-made Bianchi bicycle as birthday gift for me, encouraging me to continue riding.  I would often tease her and say that just because my physique was radically changed by a bike ride when I was 14, doesn’t mean it will happen again. Libby’s response was always the same, “Barry, that’s not the reason I bought the bike for you.  I bought the bike because I love you;   Of course if you ride enough…???…who knows???”

I did make lots of bicycling trips in the next 30 years, including one memorable ride on a tandem bicycle with my niece Samantha Gilley where we went from Chattanooga to Memphis, TN to raise money for St. Jude Children’s Research Hospital.

After Libby’s breast cancer diagnosis, chemo and radiation treatments, we were all looking for a little distraction from all of the doctor visits, so we decided to put together a bicycling trip. I made the following two posts to the Caring Bridge website during that time; one during our trip and one shortly afterward we arrived back home:

Aug 19, 2009 7:24pm

Greetings from Troy, Alabama!  Libby is acting as our support vehicle this week while Nathan and I ride our bicycles from our house to Destin, Florida.  We have 290 miles behind us and about 130 miles remaining, dodging storms and high winds from tropical depressions while Libby is driving her car, reading her books and supplying us with water, ice, Gatorade and encouragement.  Jerod is working this week but will meet us in Destin tomorrow night and we will relax a few days on the beach before riding back home (everybody in cars this time).

The MRI that was originally scheduled a few weeks ago, was canceled as the doctor wanted to give it a few more days without the drug.  Libby has now been almost a month without the estrogen suppressant drug and the headaches and some dizziness are still persistent. Libby called her oncologist yesterday and he has re-scheduled the MRI for Tuesday August 25th at 10:15 AM.

We are praying that we can find the cause of the headaches and find a way to treat them.  Thanks for taking the time to keep up with Libby and for keeping her in your prayers.

 By Aug 26, 2009 7:19am

Dr. Schlabaugh’s office called late yesterday to say that the head MRI showed no signs of cancer!  GREAT NEWS!

As Libby and I drove back home following our Florida bike trip we listened to some CD’s on marriage and communication.  One of the lessons stated that to be a good communicator one should tell the audience what you want them to know and then briefly summarize it to make sure you are being understood.  So I am going to apply some of the knowledge I have learned about communication by summarizing the first part of this entry to make sure all of you understand:

“Libby had a brain scan MRI on Tuesday at Erlanger Hospital and they couldn’t find anything at all”.

I think those CD’s are really working!

Barry

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A Moment Frozen in Time

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“Hey, baby…(long pause)…where are you?”  It was Libby’s voice on the other end of our cell phone conversation on a fall morning in 2008; now, nearly six years later, every word and every awkward pause of the conversation is frozen in my mind.

I’m certainly not alone here, we all have them, those indelible moments from our past when it seemed as if time stood still, those events in our memories which are separated from the ordinary days by the preface, “I can tell you exactly where I was and what I was doing when I heard about ________________.  For me, the big three were the Kennedy assassination, the space shuttle disaster and the twin tower attacks on 9/11; or at least they were before I received that call from Libby.

September 2, 2008 was a very ordinary Tuesday morning as I left my office on a short two-day sales trip with planned stops in Athens, Maryville and Sevierville, TN,; along the way I would be seeing some of my existing bank customers and calling on some new ones.  As I exited off of Interstate 75  toward Athens I was thinking about the fact that, for me at least, selling was more like getting paid to visit with friends than actual work.

Libby called my cell phone that morning and there was a strange timbre in her voice that I will always remember as she said, “Hey baby…………where are you?”  An odd question, I thought, since I had told her where I was going just a few hours ago while packing my bag.  As I began telling her again where I was going it seemed as though she wasn’t listening this time either because she said, “Oh… OK…. well that’s nice”.  After just a moment of silence, it was evident that her mind was somewhere else when she added, “Oh yea, that’s right, didn’t you tell me that already?”

Libby normally went with me on these trips but she wanted to work on her children’s program at church and besides she had scheduled her mammogram for the first thing that morning.  Libby always dreaded her mammograms which seemed to become more painful every year because of the increasing number of fibrous cysts that she developed in her breasts, in addition, the cysts made it more difficult for the radiologists to read the results, causing more than one cancer scare in the past.

As our phone conversation continued, my stomach was suddenly in knots and I still can’t fully explain what I was feeling, but the strange tone of Libby’s voice made me uncharacteristically pull off of the road so I could concentrate on the conversation, that’s when I asked, “What’s wrong Libby?”

After a brief moment of silence, Libby began, “I’m sure its nothing, I probably shouldn’t have bothered you with this but…” .  Libby then went on to explain that a new radiologists had read the mammogram and even though she explained her history of fibrous cysts he wanted her to see a surgeon for a sonogram as soon as possible, in fact, they had set up an appointment for the following day at 4:00 PM. Then in typical Libby fashion she told me, “Barry, you go ahead and keep your appointments, I’ll get Miss Helen to go with me because I am sure its just the cysts like every time before”, but I could tell from her shaky voice that she had not convinced herself of that fact.

At about the same time that Libby was saying, “Barry, you go ahead and keep your appointments…” I had already turned toward home, accelerating up the I-75 South on-ramp while Libby continued to fill me in on exactly what the doctor had said.

When it comes to the complicated science of modern medicine, most of us want instant answers and instant cures, so we often become frustrated with medical professionals when they seem rushed and even disinterested during a routine office visit but then later when you are waiting on test results, they appear to be slow and methodical. Having been on both ends of the spectrum, I can tell you that in most cases they move as fast as they need to, besides too much attention from a doctor is usually not a good thing, such as when they set up your appointment at the end of the day so that,  “…the doctor will have more time to talk to you.”, or when they personally call to arrange for additional testing and consultations setting up appointments one after the other.

Our next set of appointments came the next day (one after another) as we met the radiologist, ultrasound technician and then by 4:00 PM on Wednesday afternoon we were sitting in a surgeon’s office (his last appointment of the day) reviewing all of Libby’s charts and test results.  As we both prepared for the worst, Dr. Burns looked up from the charts and shocked us both, “Mrs. Gilley, I agree with you, the lump appears to be one of many fibrous cysts, I have seen a lot of these and I am confident that yours is not cancerous, I suggest you have another mammogram in 6 months and lets just watch it.  You are free to get dressed and leave and I would like to see you again in February.

Wasting no time in leaving, Libby and I were giddy with excitement as we went out through the deserted waiting area littered with 2-year-old magazines.  We knew that we had just dodged a bullet and our emotions were trying to recover some equilibrium after our 24 hour roller coaster ride.

Our biggest decision now was whether we should split the 8 ounce or the 11 ounce Renegade Sirloin from the Longhorn Steakhouse to celebrate. The sides would be a loaded baked potato and Caesar salad, but now Libby was holding out for the smaller 8 ounce steak so she could more easily justify the Chocolate Stampede for desert as she joked, “I have no intention splitting that with anyone!”

Holding hands like two school kids, Libby and I were in the hallway outside of the doctor’s office and I was reaching for the “down” button to call the elevator just as Dr. Burns opened his office door and joined us in the hallway. I just assumed he was heading to his car as well, but then he said, almost as an afterthought, “You know Mrs. Gilley, just to be on the safe side, step back into my office with me for just one more quick test before you leave, since you are already here”.

I am sure readers of this blog never hear voices in their head (or at least none that they admit to) but the voices in my head were screaming when Dr. Burns asked us to go back into his office, “……Push the elevator button…..He has no jurisdiction in the hallway………..He’s not the boss o’ you“.

Before either one of us fully realized what was happening, Libby was once again holding my hand, but this time with a death grip as Dr. Burns performed a biopsy with little warning and no anesthesia.  I was sick to my stomach with sympathy pains as I kept wiping away Libby’s tears with my free hand saying, “I’m so sorry Baby, I wish I could make it stop”, a statement that I would find myself repeating many times over during the next 5 years.

Lessons Learned (or not)

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When Jerod and Nathan were toddlers their great grandmother (Libby’s mom’s mother) died during the spring of 1989 following a brief illness. While we were on our way back home from the funeral in Greensboro, Alabama Jerod wanted to know where Nonnie was now.  Libby and I tried to explain to our young boys in very simple terms some complex ideas that, frankly, we had trouble understanding ourselves.  It was difficult at best explaining the death of a loved one to the two restless, short attention spanned boys in the backseat of a moving car and as usual you never know how much information is actually sinking into their little brains especially when the conversation proceeds something like this, “…but dad…… why can’t we just drive over to her house and see Nonnie?”  as the younger Nathan chimes in with, “Yes daddy….please!!”  Trying to select my words carefully now I say, “Nonnie is not at her house, she is heaven with Jesus.”  Both boys appeared to be in deep thought and I was sure my bright children were considering their own mortality.  Jerod quickly broke the silence when he said,  “Ok, then can we stop for ice cream?” and Nathan followed with, “Yes daddy…….please!!”

Later that evening when we were back home, Libby was in the kitchen cooking supper and I was playing with the boys in the living room when we heard a scream coming from the kitchen; Libby had just seen a bug crawl across the floor.  Now Libby was deathly afraid of bugs and she definitely did not want to get close enough to kill one, so she called to me over her shoulder as she ran out of the room, “Barry, come kill this bug!”. As I got up to perform my manly duty Jerod quickly jumped to his feet and said, “Let me do it dad.”  I looked at Libby and shrugged my shoulders as our four year old walked into the kitchen, assessed the situation and then turned back toward his mom and me as he lifted up his cowboy boot preparing to step on the bug.  “Watch this,” he said, “I’m going to send him to see Jesus!”  I looked over at Libby and whispered, “We may need to have that heaven discussion one more time, I’m not sure that the right message got through.”

Nonnie’s was the first death in our family that our boys would experience and as it turned out, it would be the last time they experienced that kind of loss for a very long time; in fact 21 years would pass between the death of their Nonnie and the next death in our family.  When the boys were both in college Libby and I had a conversation which began with Libby saying, “I’m really worried about our boys, they have lived a charmed life”.   Not really sure where all of this was going I asked what she meant by “charmed life”.  Libby said, “Well, except when they were toddlers, they have never experienced the loss of a loved one.”  Libby went on to explain how she was afraid that because our boys had been spared that particular agony they never developed the skills to deal with the loss of someone that they love.  I told Libby that they were smart boys and we would just have to pray that we had laid enough groundwork in other areas of their lives to carry over, because they would certainly have their share of grief sooner or later,besides there was nothing that either one of us could do that would delay or speed up that experience for them.

Sadly, beginning a few months after that conversation, our boys would get multiple opportunities to develop grieving skills as their cousin Samantha Gilley, grandmother Joyce Gilley, grandfather Jimmy Willis, uncle Michael Gilley and then finally, their mom Libby Gilley all “went to see Jesus”.

“We are hard pressed on every side, but not crushed; perplexed, but not in despair; persecuted, but not abandoned; struck down, but not destroyed” (2 Corinthians 4:8-9 NIV).

Our Family Grows

After several years as an early childhood educator Libby was well on her way to becoming a well respected and even admired teacher in every school in which she taught, my career with Olan Mills, however, was another story.  Libby and I had talked about starting a family and I had quickly realized that a photographer’s salary was not going to provide sufficient support for a family, especially if she decided not to go back to work.  After some serious discussions with Libby and lots of prayer, I quit my photography job and enrolled full time in the engineering program at the University of Tennessee at Chattanooga six long years after graduating from high school.

To help with finances while I was in college I had as many as five different jobs at one time including free lance photography, a bottled water delivery business, construction and solar panel sales.  Four years and a lot of sleepless nights later I would graduate from UTC attending commencement exercises in the spring of 1986, but not before Libby announced a commencement of her own.

During my junior year in college Libby became pregnant with our first son Jerod and he was born in November of my senior year.  On Monday after Jerod was born I skipped class with plans to hand out bubble gum cigars to my professors until I found out how much a box of bubble gum cigars cost, that’s when I decided that I would hand out the “real” cheap cigars wrapped in blue cellophane proclaiming  “Its a Boy!”.   After all, the guys had Phds, so surely they knew the hazards of smoking.  In hind sight I should have destroyed the empty cigar box because Libby found it and was not happy with my choice.

I had always marveled at Libby’s ability to fall in love with the students that she taught and become absorbed in their lives far beyond the classroom.  I had never before seen such a capacity to love so completely and so quickly, but then we had our own and she fell in love more deeply than ever before.

Our family was not the only thing changing; during my second year of college I began working for a small construction company designing and building earth sheltered houses, installing storm windows and other energy conservation materials in houses.  I enjoyed the work and as the small company began to grow we began designing and building more commercial projects and soon Libby and I took out a second mortgage to buy stock in Construction Consultants Inc.

When Jerod was nearly two years old, Libby gave birth to our second son Nathan and seemed as if everything was going perfect for us with two healthy boys, a growing business, a great church, great friends and a close family.  Life was good and we often commented to each other and to our friends that were indeed blessed. Then we received a call from the hospital.

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The phone rang late one evening as Libby listened to the caller I watched the life drain from her face.  Libby quietly hung up the wall phone and starred into Nathan’s eyes.  When I asked her who was on the phone she told me that one of the nurses who had been in the delivery room when Nathan was born had called to say that we needed to bring him back in for additional tests.  The nurse went on to tell Libby, in a very matter of fact tone, that one of Nathan’s screenings had shown some abnormalities which indicated mental retardation and we needed to make plans to bring him in for additional testing to see the extent of the retardation.  Libby and I had just gone from most amazing high to the deepest low in minutes and for the remainder of the evening Libby could not be consoled as she sat in the living room floor cradling Nathan in her arms and sobbing.

Jerod must have sensed the uneasiness in the house that evening because it was difficult to get him to sleep as I spent most of the night in the guest bed next to Jerod’s room because he was so restless.  The next morning I found Libby still in the living room holding Nathan praying and sobbing.  I never asked if she got up early or stayed up all night because I was in a daze as well.  After breakfast I dressed the boys and got them ready to go the hospital while Libby called the doctor’s office to find out where the test would be performed, but when the nurse looked up Nathan’s chart she said there had been a mistake and someone was supposed to call us back to let us know that there had been a mix up in the lab and Nathan’s test was fine.

Libby was not happy with way that the hospital staff handled the situation and that may have been the most angry I have ever seen Libby in our 35 years of marriage (at someone other than me).  Libby was a bundle of emotions as she was simultaneously relieved, irritated, ecstatic and frustrated.

If nothing else the episode demonstrated to us both how precarious the good times can be and how quickly things can change, a lesson that we would continue to be taught many more times in our life.